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Contacting the patient you supported

Even after donating, you may find you have new questions. Often, these are about the recipient of the stem cells. How is he or she doing? Is it possible to get in touch or even get to know each other personally?

Even after donating, you may find you have new questions. Often, these are about the recipient of the stem cells. How is he or she doing? Is it possible to get in touch or even get to know each other personally?

Whether, when and how contact between donor and patient is allowed depends on the rules of the different countries. Everywhere there is at least a two-year period of anonymity. However, in many countries it is possible to contact each other anonymously - by letter or e-mail - before the end of the anonymity period. In many countries, donors and patients can meet in person after this waiting period if both agree. Unfortunately, some countries prohibit contact.

Whether you would like to make contact is and remains your own personal decision. There is no general answer to this question and every donor is free to decide whether or not he or she wishes to do so.

We will accompany you in your individual decision-making process and will gladly provide you with all the information you need. You can contact us at any time with any questions you may have during this time. We are also and especially there for you if you have doubts, are worried or perhaps have received sad news about "your" recipient. If you and your "genetic twin" have come to the conclusion that you would like to get to know each other, we will be happy to support you on this path and look forward to meeting you!


Do you need more information?

There are many ways to get involved and support our mission.

You could be raising awareness, join the registry, hosting your own event, taking on a fundraising challenge, or anything in between.
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